Lately has been more difficult because of my stomach. What scares me is that it started with symptoms I had 14 years ago only it is more severe in a way that anything I eat my stomach gets in so much trouble, it's constant as compared before it was about maybe twice a week, maybe three the most.
It is hard to eat, I think of what to eat and when it's there and I start eating, I feel like throwing up. I don't have an appetite. I force myself to eat because I need it in order to take my meds.
I cut down again on Neurontin from 2400 to 1800 today. It maybe abrupt but I have to consider the condition of my stomach, I feel like I have thousands of cuts inside of it. It is paaaaiiinnnffullll!!!! I'm scared!!! I can't stand straight, I have to crunch my stomach because of the pain and there is pain in my back on the left side which I have no idea why.
For many years, I fought hard from not being able to walk in 2002 to walking about a couple of miles or a mile about three times a week but it makes me sad that lately, I have been spending more time being in bed. Being in the computer is a challenge because of my neck hands and arms including my eyes. Even sorting out my mail has become challenging. I try to walk my dog everyday even for a few meters, but today was very difficult because of the pain in my buttocks (has been a long problem causing ataxia)which I had fought for long. I cannot wait to get my new wheelchair. I got my powerchair in August of 2009 but this past month I went for a wheelchair evaluation because I will be given a different one to accomodate the decline in my condition. I can only sit for a few minutes, so I need a wheelchair that can recline more and with leg adjustment.
I am hoping that my condition will stop declining or even get better. It is not easy being in bed most of the time. It's spring and soon when the sun comes out I'm hoping that I'd be able to have a vegetable garden and an herb garden to pick herbs during days that I can cook!
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